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Halley's Progress (Online Diary)

Here's a chance for you to contribute.

What I love about the web is the opportunity to share my thoughts with others. But I also like to hear what others think, and to exchange ideas.

On this page, I'll share some of the comments I've received in my guestbook and via e-mail. Where appropriate, I'll include a link to the original log entry or essay that inspired the comment. In some cases, I also may also respond to the comments.

Yesterday I received an email, with this question:

*** I am interested in EFA but have not seen any discussion of whether there is a "down" side to taking these supplements. Are you aware of any potential problems with taking these supplements?

My Response to this:

I have read the information from the Cherab Foundation, and did not read anything about "down" sides to taking these. Now please be aware that this was a small study group of 19 children, and it is now going into a larger nationwide study group, to do further study. Anyone interested in doing this on their own as I have, should talk to their pediatrician before giving anything to their child.
My personal opinion on this? Well, these supplements are just that, supplements. These are nutrients found in food, from the study I gathered that it is possible that the child did not get enough of these in womb, therefore causing a defiency. These supplements help the neurons start communicating again, and that is basically what apraxic children can not do. I am documenting this information so that you as parents can see what a "real" mom feels, and goes through with doing this. I am not a scientist, nor a doctor. As a parent I have decided to try this, because this could be the answer. I am not recommending that anyone try this on their own, use your own discretion, and talk to your doctor about any and all concerns you may have.

A Few More Questions:

When should we notice an improvement from speech therapy?
That is something that can not be answered, it does depend on the severity of the disorder, and how much therapy the child receives.

Why would being in the birth canal too long cause apraxia?
Again, I am just a mom, I can not answer that either. My guess is that there must be some oxygen loss, I am unsure. There is a poll you can take, that I am asking these kinds of questions, to see if I can make some connections between the causes.

(This is from a relative of a child with a "speech delay")
At what point should I speak up and tell the parents to be more agressive with the treatment?
This all depends on the relationship. If it were my family I would keep mentioning to them, I am good at never shutting up about something I am passionate about. By all means be sensitive, I personally filter advice, take in what I like, and throw out what I do not think would work for my child.

When did you learn your daughter has an actual disorder, and when and how did you get the diagnosis?
I learned she had it when I read about apraxia over 2 years ago. The actual diagnosis part I am still working on, I live in a very small town (the doctor makes house calls!), and I am trying to find a doctor that understands apraxia. So when I find out I will let you know.....

The Cherab Foundation: More information about the EFA study